Good morning everyone
Long post and update and a WARNING for all women.
Before we get to how I am doing… I could’t resist sharing part a lecture given to me yesterday.
I was hoping for results on my stem cells.. and there is plenty of info to share below I promise worth reading but here to you is my lead story… then we will get to the rest.
Below are quotes from a world renowned Oncologist whose expertise IS LEUKEMIA from yesterday’s follow up appointment for me. Yes.. as a journalist.. consider that these are just statements and I am in no condition to go out and do a news report for you today and talk to countless experts and cover all angles and as soon as I am well enough to go out and do the interviews myself and get to the bottom of this I promise you I will. I have long heard the concerns about hair dye and for years ignored any concerns because for most of us women…. we simply would rather look good and ignore all the warning and consider it speculation and that it won’t happen to you. Hey… i even took good hair a step further and did quite a few of those straightening treatments. You probably do those too. I’m not saying quit.. but take these statements below and do your own research and see if it is worth the risk to you. We don’t know and will never know what caused my cancer but I feel this information must be shared. Consider this an unconfirmed report by a very good source. Any of my friends in the media or Cesar’s friends who are reading this and want to take this a step further.. sign me up to help you out. I want to be part of this fact finding mission.
“NO ONE WILL GO ON THE RECOND AND SAY DEFINITIVELY HAIR DYE CAUSES CANCER BECAUSE NO ONE WANTS TO FIGHT A LEGAL BATTLE BUT LET ME TELL YOU THIS……. WHEN WE TAKE THE VERY SAME CHEMICALS IN HAIR DYE AND PUT THEM ON RATS WE KNOW THEY CAUSE CANCER… YET WOMEN LATER THEM ALL OVER THEIR SCALPS MONTHLY. “
“YES THOSE ARE THE SAME CHEMICALS THAT CAUSE LEUKEMIA.
YOU ARE NOT ALLOWED TO DYE YOUR HAIR.. NOT TODAY. NOT TOMORROW. NOT EVER.”
“WHEN YOU USE HAIR DYE YOU INCREASE YOUR CHANCE OF LEUKEMIA GOES UP 5X.”
This doctor also jumped to conclusions when he saw my hair has been dyed because I assured him it was only HENNA and it was plant based and no chemicals are in it. the response “define chemical… it certainly has properties to change your hair color. Toxic —perhaps not… but for a woman who is already dealing with leukemia I advise you to never do it again. You cannot afford risking any risks. We simply don’t know enough about it.” For other women perhaps this might be a better option though.
Now to the rest of my story:
Yes we are STILL waiting test results that would determine if I need a bone marrow transplant. We do know the bone marrow was clear — that’s good news. That’s means the mature cancerous cells were not there. But we need to know if the stem cells -the queen bee producing the cells- are making cancerous cells. The long wait is because I am patient #1 on a Johns Hopkins study. Studies depend on grant money and they are not staffed daily. However, I’m blessed to be part of the study. They feel this is groundbreaking to know because they haven’t had access to this kind of info at this point in treatment before. So…. we WAIT and wait and wait.
The decision yesterday was supposed to be 2 options…
*go in for a transplant if the stem cell was positive
*go back in for my 5th round of chemo (the 4th round of HIDAC – a high intensity treatment plan to kill cancer cells as they wake on their 60 day life cycle)
But yesterday when I walked in I got another curve ball. There were 3 issues he was upset with:
(1) Something is now wrong with my liver.
(2) my counts are STILL not normal.
(3) my hair color
He says something is making my liver go bad and he doesn’t know why and the way my liver looks he can’t give me chemo if he wanted to. He has asked me to stop anything extra i am doing except massage and drinking my fresh pressed juice to see if they can isolate the problem. Is it the Dandy blend tea I drinking? or something else I am doing? Typically, they see liver issues if you are on a lot of MEDS.. i am on NOTHING. There have always been claims associated with dandelion to detox the liver but we don’t know. I have been order to stop protein bars, protein shakes and anything extra that could be considered herbal -even though I have been eating that during this entire process— just to rule out anything else. I can still do my fresh pressed juice but that’s all. His words “juice and REAL food” which for me always includes tons of kale, broccoli, salads etc. If it is not something I am ingesting they have to figure out what exactly has affected my liver.
Chemo can also damage the liver too but he is baffled because 3 weeks ago my liver was fine. So now on October 3rd go back to look at my liver. If it’s not better we look at other potentials reasons and I’m not sure how it is fixed.
My counts. My white, red and platelets are not back up to where your levels are on a daily basis. I left the hospital Aug 10. Was supposed to be admitted by the end of August. That’s when I SHOULD have bounced back. It’s now Sept 24 and I’m not fully recovered. He says there is a fine line and delicate dance your doctor must do to determine IF more is going to help OR hurt. (This is why it’s important to get specialized care in my opinion) Too much chemo could damage healthy bone marrow stem cells and spin off into a different type of cancer.
My doctor explained they truly never know HOW MUCH chemo patients are given. We all have different kidneys and different livers and we each process all chemicals, poisons, toxins – you name it- differently. My liver gets rid of stuff differently then you might. So let’s say we each get the same large bag of chemo on our IV stand — I may end up getting a larger dose than you if my body absorbs and processes more than you. It is also my understanding there is no way to do a “level” check to later find out. Make sense?
Basically, the chemo passes through the body. Does damage, the “cancer making factory” gets bombed and liver helps process the chemo. How rapidly it gets rid of it plays a big role. Right now we know my liver is NOT fine. It is distinctly abnormal. We will be watching it. If and when I can start treatment again depends on when I am healthy… relatively speaking.
LAST ISSUE: HAIR DYE
I listed that information above… and I urge you to do your own research but worth thinking about especially if cancer risk runs in your family.
Thanks for all your prayers.. the wait for answers is such an emotional roller coaster. I have been waiting for months to find out what is next for my treatment and the wait continues. Your prayers and support make all the difference.
Please #ArmorUp for LIFE and take care of yourself.. avoid risks.. workout..eat right.. live life to the fullest and enjoy every moment.